Patients Have Power!

Wolfram syndrome, Paralympic athletes, and all things patient engagement

Informações:

Sinopsis

Our hosts, Aaron and Brittany, are joined by Richie Kahn in our first ever Trial By Fire episode. Richie is a clinical researcher, patient advisor, and health policy professional. In this episode, Richie touches on his experience living with Wolfram syndrome, finding support from Paralympic athletes, and his insights into patient engagement in clinical trials. Transcript - Episode 1