Sma News & Perspectives

#52 - Getting to Know Luisa Palazola and Rare Disease Day 2020

Informações:

Sinopsis

In episode 52, host Kevin Schaefer talks with Luisa Palazola, a Community Manager for SMA News Today. Luisa is from Memphis, Tennessee, and she has another rare genetic condition called cystic fibrosis. During this conversation, she talks about her story and advocacy work, what she’s learned about SMA through her work here, and the upcoming event Rare Disease Day. To learn more about Spinal Muscular Atrophy, visit www.smanewstoday.com.