Fibromyalgia Podcast

Navigating chronic illness from a family perspective can be challenging for everyone involved. From small changes to daily routines to more significant shifts in family dynamics, learning how to adapt to this new normal can be difficult, especially for children. Today, Tami introduces you to Mandy Farmer and her book, Soft Hugs for Mommy, created when Mandy recognized the need for something specifically to speak to a child’s perspective. Soft Hugs for Mommy tells the story of a loving family as they navigate the challenges of mommy's chronic pain condition and it’s filled with tender moments and caring gestures. The book encourages understanding and unconditional love as the family helps Mommy with her invisible illness. Mandy also collaborated with a child psychologist to create a "let's talk" section to facilitate conversations between parents and children about chronic illness. In this conversation, Mandy and Tami discuss the themes of family support in Soft Hugs for Mommy, Mandy's background as a pastor's

“One of my core beliefs is that something good can come out of everything.” - Tami Stackelhouse So much of life is uncertain, and as a chronic pain patient, there’s no shortage of things to stress you out and make you worried. From finding out that the medication you need is out of stock to facing the threat of a layoff or having a health scare, there's bound to be a time in your life when you feel out of control or like you’re at the mercy of others. So, what do we do when faced with those feelings?  First, Tami wants you to know these feelings are normal. We see you and feel you and understand precisely how that feels. Secondly, Tami wants you to recognize that we’re often more understanding with those we love than with ourselves. Don’t deny your body the opportunity to process those emotions so you can move on. Today, Tami shares strategies you can use in uncertain times to find the strength and support you need. She’s discussing why we should normalize feeling anxious about the inevitable uncertainties in

“The room's not moving, but you still feel like you're on a boat. It just feels terrible.” About 60 to 70% of all fibromyalgia patients also deal with dizziness, which shows up in two main ways: lightheadedness and vertigo. With lightheadedness, you’ll typically experience a feeling like you might faint or pass out, whereas with vertigo, it feels like the world is moving even when you’re holding still. For the past week, Tami has been dealing with an episode of bad vertigo, and she decided to use this as an opportunity to bring the topic to the podcast since, chances are, you’ve experienced dizziness too. Today, Tami is talking about the differences between lightheadedness and vertigo, the most common causes of lightheadedness in fibromyalgia patients, her recent experience with vertigo and how it compared to her first episode, the role of the vestibular system, conditions which cause vertigo, symptoms of BPPV (benign paroxysmal positional vertigo), Ménière Disease and unilateral vestibular hypofunction, how

“When we share our stories, it helps everyone around us.” As our students go through their training programs and approach graduation, many of them start to think about sharing their fibromyalgia stories. The idea can be daunting, especially with fibromyalgia, because there’s a stigma that comes with it. For many of us, it feels safer to keep it to ourselves because we have no idea how people will react. What will that look like? What will it feel like? For Tami, sharing her story was an essential part of her journey, and she’s a big believer in how our stories can help the people they reach. Today’s guest, Meg Stafford, joins Tami to talk about how sharing our stories helps the healing journey. Meg was diagnosed with breast cancer in 2007, and as part of keeping in touch with friends and family during her diagnosis and treatment, she started an email newsletter, which so many people found helpful that Meg turned it into a book. In this conversation, Meg and Tami discuss Meg's experience with breast cancer, wh

“What do you do if you notice fibromyalgia symptoms in a family member?” A few weeks ago, one of the students in our Certified Fibromyalgia Coach® training class raised this question, and Tami hears variations of it all the time. Whether it’s your kid, sister, mom, or another relative, figuring out how best to handle the situation can be difficult. A big part of answering this lies in the knowledge that fibromyalgia has a genetic component. If you have fibromyalgia, your first-degree relatives (parents, siblings, and children) are eight times more likely to develop fibromyalgia. The other part is recognizing that treating acute injuries quickly and well is crucial to preventing chronic pain. Considering these factors, if you see something happen to your close relative, you’d want to bring awareness to the risks so they can treat the situation immediately and increase their chances of having the best possible outcome. Today, Tami explores how to recognize and address fibromyalgia symptoms in family members and

Whether we're talking about pain, fatigue, or brain fog, there’s a massive difference between preventing your symptoms and trying to treat them after they’ve flared up. Getting your symptoms back to a manageable place in the middle of a fibro flare is like trying to catch a runaway train. Sometimes, when that happens, the only thing to do is to let the flare run its course. Feeling helpless or out of control in a flare is not a position any of us like to be in, and that’s where prevention comes in. When we take the prevention route, we develop systems and strategies ahead of time that set us up to feel our best. It means being aware of early warning signs so you can nip symptoms in the bud before they balloon into a flare. Today, Tami is talking about how to shift your thinking from treating after you experience those symptoms to preventing those symptoms in the first place. In this episode, Tami shares what it is about fibromyalgia that makes prevention difficult, how explosive synchronization and central se

Welcome to the final episode of our special Be a Coach series. So far, I’ve answered questions about our Certified Fibromyalgia Advisor® class and what it takes to become a Certified Fibromyalgia Coach®. Some of the topics covered in the first three parts of this special series were what a Certified Fibromyalgia Advisor® and a Certified Fibromyalgia Coach® is, the difference between the two, who makes a good Certified Fibromyalgia Coach® and who is better suited to be a Certified Fibromyalgia Advisor®, what you need and don’t need to become a Certified Fibromyalgia Advisor® or Certified Fibromyalgia Coach®, why the world needs fibro coaches, and why you should consider becoming one. In this final installment, I’m digging into the nuts and bolts of how you can become a Certified Fibromyalgia Advisor® or Certified Fibromyalgia Coach®; including the exact steps you need to take.       Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in th

“You need to make room for yourself.” - Lauren Vazzano If you’re struggling with fibromyalgia and juggling the responsibilities of motherhood, you’re not alone. The good news is that you can feel better with the right strategies and support. Making yourself a priority and improving your health is the best way to support your family and help them to be in good health and good spirits. Focusing on yourself can feel much easier said than done when you're in the thick of things, and that’s where a coach can make a huge difference. You don’t need to go on this journey alone. Today’s guest, Lauren Vazzano, joins Tami to talk about how she was able to drastically improve her fibromyalgia symptoms as a stay-at-home mom with two young children. Diagnosed in the fall of 2020, Lauren's story is a testament to resilience and the power of being proactive about your health. In this conversation, Lauren and Tami discuss Lauren’s fibromyalgia diagnosis timeline, how she was affected by the pandemic, the difficulties of homes

Welcome to episode 03 of our special Be a Coach Series. In this series, I answer questions about our Certified Fibromyalgia Advisor® class and what it takes to be a Certified Fibromyalgia Coach®. In episode one of the series, I explained what a Certified Fibromyalgia Advisor® is and what a Certified Fibromyalgia Coach® is. Episode two of the series was all about who makes a good coach and who is better suited to be an advisor. I also covered what you need and don’t need to become a Certified Fibromyalgia Coach®. In this episode, we’re taking a deeper look at why someone would want to become a Certified Fibromyalgia Coach®, why the world needs fibro coaches, and why you should consider becoming one.           Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. Don't like waiting? Register now to have the complete 'Be A Coach' series, along with several bonus

“Give yourself some grace and just know that you've done this for a reason, and it will make your life better.” - Deb Thompson   Many times, people with fibromyalgia put off surgeries that they need to have because they're worried about the inevitable fibro flare that's coming. When we have surgery, chances are that it’s going to cause a fibro flare. The good news is that while our pain may initially get worse, it then gets much better.   The key to getting through this is planning and owning what you need. No matter how close someone is to you or how much they know you, it’s always your job to understand and communicate your needs. When you have the right tools, it’s much easier to put that possible fibro flare into perspective and do what’s best for your health.   Today, Tami is joined by Certified Fibromyalgia Coach® Deb Thompson to discuss practical tips for anyone with fibromyalgia who is facing a major medical procedure. Deb has recently had her third major surgery in eight years, and she’s sharing what

Welcome to episode 02 of our special Be a Coach Series. In this series, I answer questions about our Certified Fibromyalgia Advisor® class and what it takes to be a Certified Fibromyalgia Coach®. I cover all the basics… the who, what, when, where, why, and even the how. Don’t understand what a Certified Fibromyalgia Coach® or Adviser is? No problem. Just pop on over to episode one of the series because that is exactly what we covered in that episode. In this episode, I’m covering the who. Who makes a good coach? Who makes a good Certified Fibromyalgia Coach®? Who makes a good Certified Fibromyalgia Advisor®? And, how do you know which one you might be? I also cover what I look for in the applications I accept into the training program and what you need and don’t need to join us a become a Certified Fibromyalgia Coach® or Advisor yourself.         Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and disc

In the US, approximately 1 in 13 women and 1 in 20 men are diagnosed with fibromyalgia. To put those numbers in perspective, breast cancer affects 1 in 8 women, cervical cancer affects 1 in 13 women, and colon cancer affects 1 in 25 women and 1 in 23 men. Yet, even though the prevalence of fibromyalgia is in a similar range, screening for these cancers has become mainstream, and fibromyalgia remains on the sidelines of medical training. As patients, we have to be more proactive than ever and be as knowledgeable as possible to make good decisions about our care. In many cases, we know more than our doctors, who - despite being compassionate - just don’t know how to help you. Unfortunately, it’s just the way the system is set up. This is the reason Tami created the International Fibromyalgia Coaching Institute. A Certified Fibromyalgia Advisor® or Certified Fibromyalgia Coach® can help fill this care gap by educating, encouraging, and supporting people with fibromyalgia. In today’s ninth installment of our Stor

As a master Certified Fibromyalgia Coach®, author, and fibro podcaster, the questions I’m asked more than any others are: How do I get better? How do I improve my Fibromyalgia so I can get back to living the life I want to live? While those sound like simple questions, they do not have simple answers. We all have similar symptoms, what helps you feel better may not be the thing that helps me feel better. We all have to find our own magic formula for what makes us feel best. I know from personal experience just how overwhelming it can be to find that formula on your own. That’s why I created a training program in 2015 that would teach people just like you how to improve their own Fibromyalgia, and how to help others do the same. In this first episode of a special series where I’ll be answering a lot of questions I get about our Certified Fibromyalgia Advisor® class and about becoming a Certified Fibromyalgia Coach®, I want to start super basic. We’re going over what a Certified Fibromyalgia Coach® is, how that

“I’m having trouble finding my team, as you call it. I often feel so alone in this. How can I best find a doctor to suit my needs?” Choosing your healthcare team is a highly personal process that requires you to really understand your specific wants and needs. There are so many options, and, let's face it, there aren’t a whole lot of good doctors out there. When building your health team, remember you won’t find one doctor who can do everything for you. You need a team of people, from a sleep doctor to a chiropractor to a primary care doctor and more in between. Once you have a team in place, there are still several reasons you may need to go back to the drawing board and find a new provider. Whether you’ve moved further away, you’re experiencing new symptoms or a new diagnosis, or you simply feel like you’re no longer in good hands with your provider, there are certain things that signal that you should move on. You should never settle for fine. In today’s installment of Ask the Coach, Tami shares some of th

Today, Tami has another bonus episode for you! Tami was recently interviewed by Meghan DeVito for the Kingdom Employee podcast. Once again, she’s sharing this conversation with you as a peek behind the curtain into an area of her life you normally don’t see. In this conversation, Tami shares more about her spirituality and how her Christian beliefs impact her life, her business, and her work with clients. Meghan and Tami discuss the role the faith and spirituality has to help people cope with chronic pain. Tami also shares some strategies for effectively communicating, delegating tasks, setting boundaries, and adapting lifestyles to help you manage your fibromyalgia symptoms. If you’ve ever wondered about Tami’s beliefs and how they influence the type of work she does and how she built her business, this is a great episode for you to check out.         Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared an

In 2009 - two years after her diagnosis - Tami started working with a coach and making positive changes in her life. At the same time that she saw her fibromyalgia begin to improve, she started noticing beautiful cherry blossom trees everywhere. They weren’t new, but her awareness of them was. Knowing that they frequently appear in Japanese and Chinese art, she looked up their symbolism, and what she found resonated deeply with her and her fibromyalgia experience. In Japanese and Chinese art, cherry blossoms symbolize feminine beauty. They represent delicateness, strength, and power. With their fleeting beauty, cherry blossoms highlight the transience of life and the fact that no matter where you are and what you’re going through, this too shall pass. In today’s episode, Tami shares why she chose cherry blossoms in her logo, book covers, and more and uses them to represent the journey with fibromyalgia. She discusses how working with a health coach helped her fibromyalgia to start to improve, the moment cherr

In this special bonus episode, Tami is sharing a side of things you normally don’t see. Today, we’re going behind the scenes of her business to share an interview she did with Cassie Parks from build. grow. profit. Cassie’s podcast is all about how people built and grew their businesses to the point of profitability. If you have ever been curious about how Tami went from being a patient struggling with fibromyalgia to becoming a successful fibromyalgia coach and eventually founding the International Fibromyalgia Coaching Institute, this episode is for you. It’s also for you if you are wondering about becoming a coach yourself or about how it’s possible to build a business while also finding ways to improve your fibromyalgia symptoms. If you’ve ever thought you couldn’t build a business because of your fibromyalgia, please listen to this interview. If you enjoy this episode, please check out Cassie Parks’ podcast, build. grow. profit.         Note: This episode is not meant to be medical advice. Every person a

With fibromyalgia, balancing acceptance and hope can sometimes feel a little like being stuck between a rock and a hard place. Acceptance isn’t about staying where you are. It’s about embracing the unknown and allowing your body right now while being open to letting her be who she needs to be and become who she needs to become. On the other side, having hope for feeling better means that you believe life will get better, and you’re open to trying different options and seeing what works. Today, Tami is exploring how to balance the here-and-now focus of acceptance and the forward motion of hope. She’s talking about her GPS analogy for understanding the balance between the acceptance of where you are and the hope of feeling better, what it looks like to aim for being accurate about your goals rather than aiming for perfection, making continuous assessments and adjustments on your journey, accepting your current reality, the moment Tami finally accepted where she was and the struggle to get there, the danger of g

Today, I have another bonus episode for you. Back in April, I was interviewed by Adam Devaney for the Loving Our Life’s Work Podcast, and Adam has graciously agreed to let me share that conversation with you. In our conversation, we explore our purpose, authenticity, and the transformative power of self-discovery. I specifically dive into how I came to be doing the work I do today helping you feel better and how that truly is my life’s work. This is a side of my story I don’t discuss very often and I’m excited to share with you. If you enjoy this episode, please check out Adam DeVaney's Loving Our Life's Work Podcast.         Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need

Movement is not a way to pay for what you’ve eaten or shrink your body. It’s a way to care for your body and feel how you want to feel in it. If we reframe our thinking, moving away from focusing on what we want our bodies to look like and toward what we want them to do, it becomes easier to treat ourselves with kindness and respect. You can’t control your health just by eating a certain way and exercising. There’s so much more to overall health, and you can’t measure it on your bathroom scale. Instead, by setting goals that are meaningful to your life and experiences, like improving your sleep or increasing your mobility, you can shift focus to where it matters most and will have the biggest positive impact on your life. Today, Tami is joined by size-inclusive fitness specialist Kim Hagle to talk about diet culture and movement as self-care. Kim was also diagnosed with fibromyalgia just six months ago, and her work and fitness routine has had to shift as a result. If you’ve ever felt hesitant to exercise bec