Sma News & Perspectives

In SMA News Today's 20th podcast episode, Community Editor Kevin Schaefer interviews veteran caregiver Randy Clark, who has worked with Kevin for four years.

SMA News Today Community Editor Kevin Schaefer and Forums Director Michael Morale interview one another in a new format that will feature more roundtable-style discussions about SMA. This podcast takes listeners through Kevin and Michael's unique life journeys with SMA and beyond, highlighting how living with the disease has not kept them from meeting their own life goals and dreams.

In SMA News Today's 17th podcast, Community Editor Kevin Schaefer interviews Shane Burcaw, author and Founder and President of the nonprofit "Laughing At My Nightmare."

In this special edition of the SMA News today podcast, Forums Editor Michael Morale discusses AveXis' recent announcement that experimental SMA gene therapy AVXS-101 has been submitted to the US Food and Drug Administration (FDA) for approval.

In SMA News Today's 16th edition of Community Editor Kevin Schaefer's podcast, Kevin interviews Brian Ronningen -- a 48 year-old Human Resources professional who has SMA type 2 -- about his experience growing up with the disease in the 70s and 80s, as well as his perspectives on employment for those with disabilities.

In the 15th episode of the SMA News Today podcast, Community Editor Kevin Schaefer interviews Byron and Moriah Potter -- parents of two children who have SMA.

In SMA News Today's 14th podcast, Community Editor Kevin Schaefer interviews college student Amber Bosselman, who talks about her diagnosis as a child, life growing up with the disease, and her present and future goals.

SMA News Today Community Editor Kevin Schaefer interviews Ann Heathcote -- a college student with SMA type 2.

24 year-old Kristin Walters talks to SMA News Today Community Editor Kevin Schaefer about overcoming depression, travel to Europe with SMA, and her experiences with Spinraza.

SMA News Today Community Editor Kevin Schaefer interviews Owen Kent, a filmmaker who has SMA. Kevin and Owen met at the 2018 CureSMA Conference in Dallas about his SMA diagnosis and experience with the disease, as well as his next, upcoming film project.

#10 - Friederike And Anna Wittchen From #CureSMA 2018 by SMA News Today

SMA News Today Community Editor Kevin Schaefer interviews Israel and Rio Landa, both medical professionals whose son Mateo has type 2 SMA. Israel and Rio talk about their diagnosis experience, feedback about Spinraza, what their daily life as caregivers is like, and how Mateo is doing.

In SMA News Today's 8th podcast, Community Editor Kevin Schaefer interviews Wheelchair Rapunzel Founder Alex Dacy. Visit the site here: https://www.wheelchairrapunzel.com

SMA News & Perspectives - April 24, 2018 by SMA News Today

SMA News Today Community Editor Kevin Schaefer interviews Brian Bucher -- a parent of a child with SMA and founder of Aydn's Dream. Brian talks about his family's experience with the disease, his efforts to support the community through promoting live music performances, and his fervent belief that accessibility is a Civil Right. Learn more about Adyn's Dream here: http://www.adynsdream.org and on Facebook: https://www.facebook.com/AdynsDream/

SMA News & Perspectives - March 28, 2018 by SMA News Today

SMA News & Perspectives - March 7, 2018 by SMA News Today

SMA News Today interviews PG Sports Founder Paul Guarino. Visit the PG Sports homepage at: https://pg-sports.com

In SMA News Today's fifth podcast, Community Editor Kevin Schaefer interviews Brynne Willis. Brynne is a graduate student at Johns Hopkins University where she is studying the psychological effects of living with SMA. Listen to her talk about her work, perspectives on living with SMA, and other amazing insights into the SMA community, which she describes as " . . . some of the most positive, resilient, and tenacious people I have ever met.”

SMA News Today Community Editor interviews Dr. Danielle Sheypuk. Danielle is a renowned clinical psychologist with SMA who focuses her research on SMA and dating.